Wednesday, July 30, 2008

He's Home Again

Hi Everyone:

Jim is home again. Of course, he's not feeling well. He's vomiting, tired, and having terrible body aches from the Neulasta shot that helps his body replenish the white blood cells that the chemo knocks out of him.

Gloria has been busy as heck. She is doing some work for a friend's husband and orchestrating an estate sale for mid August, to help make some much needed moola.

Keep praying for us. "Ask, and you will receive." The "ask" in that verse, in the original language is in the present tense, which means to "KEEP ASKING." I guess that goes in line with "pray without ceasing."

Thank you muchly for your prayers, and any and all contributions that you have made to our lives. Without them, we would not feel the love of God or the love from you. We have been reduced to needing it. Thank you Jesus, for destroying our pride. We ask that you restore us as well, for many reasons, one being to ape our fellow brothers and sisters in you, who have taught us what it means to truly "love one another."

Jim and Gloria
Gloria is the typist. tee hee hee

Monday, July 28, 2008

# 3 almost over

Jim's 3rd chemo is almost over. Pray that the LN mass continues to shrink it's last bit with this round, and that it's gone. And then pray that he STAYS in the NED (no evidence of disease) category until such time that we can get him in for the Stem Cell transplant.

And pray for me, too. I'm tired, lonely, and get this...excited about life and happy. It's a weird mixture, but I'll take it. I praise God that there is no depression. I danced that dance once a few years ago for a couple of months, and oh man, depression is hard. The loneliness is hardest thing for me.

Nice seeing some of you at church yesterday. That filled my love tank. I love my sisters.
Gloria

Saturday, July 26, 2008

I hate Health America

The definition of Irony...

We can't go to the Hillman Cancer Center (UPMC Presby/shadyside) for the Stem Cell Transplant. Our insurance won't pay. But we could go to the Cleveland Clinic or John Hopkins.

But we couldn't go to the Cleveland Clini or John Hopkins when it wasn't cancer. Had we been allowed (as we begged to) Jim's cancer probably would have been diagnosed sooner, and we probably wouldn't be in the position we are in now.

But I know God isn't up there going...."Oh darn, I just wish they would have picked the other life insurance" or "crap, now what am I going to do." That's something I do. When I remember he's in charge, I can let go, knowing that.

Gloria

Friday, July 25, 2008

PET Scan Good

Hi everyone:

Well, Jim's pet scan was good. The mass that shrunk in half after the first chemo treatment, has shrunk is half after the second chemo treatment. It's now 1.8 X 1.5. The other LN's that lit up the first PET scan are all resolved. All that's left is .8 X .5 to go. We have an appt with the Stem Cell Transplant doctor, and he will determine how many more of these chemo treatments Jim is to have. Could be 3 more. He's in the hospital now getting his third treatment. I won't know what's up till the next appt.

This is very good news. However, it was very good news the first time, too, having totally disappreared after the second treatment, but it came back after the 5th treatment. So keep praying for him. We have to keep him in remission so that we can get him to the SCT, cause that's the only hope for a long-term remission.

Talked to the insurance people today, and they will not pay for clinical trials, so we have to have this basket of eggs work.

Jim's spirits were poor despite better news, only because he knows what this chemo treatment will do to him, but today he's doing better emotionally. 412.367.6700, room 6102 (I think) if you want to give him a call to lift his spirits.

K, gotta go finish cleaning the house. Woe is me....
Gloria


]He still has pain. Imagine an increase of .8 X .5 causing pain, but it does. But he's off his medicine and it's certainly tolerable.

Wednesday, July 23, 2008

From Cottage to Chemo

Hi Everybody:

Well, we had a great time up the cottage. It was good to get up there. Our friends Pat and Brenda who live up Cherry Grove came in the driveway just after we pulled in. They helped us unload the van (thanks guys) but more importantly, they disrupted some stinkin' thinkin' and me and my sister did NOT cry. This was good. (We didn't get to visit with you guys as much as we would have like to. Next time, let's have dinner together. Jim will cook. lol. Don't tell him I said that.)



Thanks to Kim and Mark for all the work they did and for helping us get there and to have some fun. Jim did a lot of resting, some repairs, some walking, some groaning, and lots of smiles. It was great to be with him outside of hospital stuff. I didn't have phones to answer, doctors to drive to, bills to ignore, mail to sort, etc. Mark did tons of work that Jim couldn't get to, and Kim cooked, and did dishes. And I beat her at Catan many times....OH YES I DID.




This is Jim and Frank. Frank lives in Cherry Grove and has been a friend of the family for a long time and knew Jim when he was 8 years old. He's 82 years old and has many ailments, but he lives in the mountains and still cuts his own wood to heat his home for the long winters in the mountains. I imagine he'll be around forever...or at least break 100 and then some. He made Mark felt old. How??? Well, Frank says to me, "I can't get the blog to work. It says I have the incorrect URL." Mark, who is half of Frank's age has no idea what a blog is or a URL. Ok, so mountain men blog now adays. It's a new world. Isn't that cool. 82 year old Mountain men who blog. You reading this Frank. I sent you a new link. ;0



He took me down in less than 1 nano second.



This is me picking black raspberries. My sister, who isn't in any of these pictures is sitting pretty on the golf cart while I do all the work....


This is our fave thing to do up the cottage when we're not fishing, hiking, sailing, birding....we call it our senior citizen QUAD. We OWN the mountain when we're golf carting around. Watch out folks...


Well, that's all the fun stuff and pictures.

Tomorrow is a scary day, despite me not being scared. I'm either in denial, or finally maturing and living each day as it comes, rather than fret and worry.

We have an appointment with Jim's doctor to review the PET scan and see if it is working. Jim's off the pain meds again, but he still has lots of pain. And 2 nights at the cottage he had a temp 2 nights in a row, which made us think is it the cancer again. But he hasn't had a temp in 2 days. So....we'll find out tomorrow and if this treatment is working good enough for them, Jim will go in the hospital for round number 3 of ESHAP.

Please continue to pray for him. His hands and feet are numb. Sometimes he can't walk well because he can't feel his feet, and his hands shake. The neuropathy is getting worse with each treatment, and he still has possibly 4 more to go if ESHAP is working...plus the big one before the stem cell transplant. And if the ESHAP isn't working, there is either another type of chemo to try or a clinical trial, and his neuropathy will only get worse. But that's the least of our troubles.

BUT OH, I'LL TELL YOU. It was SOOOOOOOOOOOOOO SWEET to not talk about that stuff or have to live that stuff for 5 days up the cottage. What a delight it was to, in a small way, not to be thinking about that stuff.

So, keep praying.

And thanks to all of you who are praying for us, cutting our grass, or blessing us in the many ways we are being blessed. You are God's arms around us. I never knew we needed you as much as we do.

Jim and Gloria

Hey JFB+LJB, check this out




HOW ABOUT THOSE APPLES?



OR BETTER STILL. HOW ABOUT THESE APPLES????




You guys got nuthin' on me and Nun.






Wednesday, July 16, 2008

Cottage

I'm taking my beloved husband to our cottage. Pray that the trip goes well.

People will be around to take care of the house, so don't any of you worry about that. I even have a friend spending a night or two.

Cheers to you all.
Jim and Gloria

Tuesday, July 15, 2008

PET Scan

Well, we are going for another PET scan to see how well this chemo is working and whether we should continue. We keep praying for healing. Hope you are, too.

We won't know the results for a week or so.

Love Gloria

Saturday, July 12, 2008

Peripherial Neuropathy

Please cotinue to pray for Jim. His hands and feet are numb from the chemo. He has lost another 15 pounds, and has loss so much strength. My stomach is in my throat from how he looks. Oh my dear poor husband.

KEEP PRAYING HARD.....

Blessings


You know we sure have been blessed by so many of your folks, in many ways and in many sizes, and I want to just tell you all we love you and appreciate you. From a handmade card to a new roof, and everything in between, thank you.


But I have to share another fun blessing.


Somewhere on the blog I was "thinking out loud" about things to do and such, and I mentioned "cut the grass." I thought, "I need to get a tractor and asked brother Tom to be on the lookout for a good deal." Lickety split, before I knew it, I had a grass cutting crew from church at my door. And Tom told me that Kenny and Nat found a FREE tractor, and Mike was looking at a cutting deck in Irwin.


One day I come home from the hospital and noticed 2 paths of grass cut. I was thinking, "who did that." I turned around and there is a like new tractor sitting in the yard. And there was no way this was a free tractor. So, I thought. Hmmmm, maybe it's somebody's tractor from church and it broke down. There was no key in it, so I figured that must be it. I thought that those guys really take their grass cutting seriously to bring a tractor. But that still didn't seem right. So I check the doors, and no notes are there. I go to the shed, and there are 2 keys, new parts, new blades, a leaf raker, a leaf catcher, and fertilizer spreader. Not to mention that the tractor has a grass catcher. I immediately knew it was Tom and Judy and called them and said, "Liar liar, pants on fire. There is no way this is a free tractor." And it wasn't. BUT IT WAS A GREAT DEAL.


So, not only are Jim and I blessed with a new tractor, but all of a sudden the grass crew from church have an easier time at cutting the grass. Again, God has used our friends and family to love us and show us his love.


Thank you all for being the arms of God so that Jim and I could feel His love. We would be so sad without it. We love you all.




Friday, July 11, 2008

The New Roof

Hi Everyone:

Well, it's a bit late, but better late than ever. Here are some pics of the roof being put on. This is the same day Jim went into the hospital because his cancer was back. It was a very good day, despite much craziness. Thank to the many many helpers who blessed us that day and all the days of this cancer trial. From cards to a new roof, you have all touched out hearts during this time.



The Boss and his apprentice.




"I have to do the whole roof all by myself."


We're over here, John.




Awww, some help. That's much better.




Hey, Mike, Matt, look, this is where Santa goes.





The Fiddler of the roof? No, it's Matt.






Part of the ground crew. Leah Baldauff, my dear daughter.




The wind is blowing in a norhtwesterly direction, Joe.




Roofer by day. Police officer by night. Both dangerous.




I need water.





The newlywed club (not counting you in the background Judy) Natalie, Ali, Mary & Leah. (There is someone else in the picture, too, but we don't know his or her name yet.) Ali is carrying a new littler roofer. Another beautiful grandchild on the way for Tom and Judy.






The Not-so-newlywed club. The stepford wives???? No.
Kim, Judy and Mary Joe.



Yes dear. No dear. I love you too, dear. That's our dear brother Tom. He's also Jim's best man and best friend.




Bill the boss. The roofing CEO. A loving brother and cracker of whips. When it's work time, he wants to see nothing but a...es & elbows.



Another very special brother Joe. Our health guru.







I'll hold the chimney while you glue it.




Earth to John. Back to work. What was he thinking or seeing?




Even friends of our nephews came. We didn't even know them. Thanks guys.



The sun is fading, and there is a bit more to go. Bill says, "THAT'S IT, NOBODY IS GETTING PAID."
Because Jim was ill that day, I was the hospital and home and everywhere, but I would have loved to have taken some pictures of the nice spread all the dear women put together, and closeups of everyone, etc., but that didn't happen. I felt Amish for the day. :)
Many thanks to all you helped. We've had some bad storms lately, and NO MORE WATER IS COMING IN THE HOUSE. AND WITH THE NEW GUTTERS, NO WATER IN THE BASEMENT. YIPPEE.
We love and thank you all
Jim & Dolly

Anybody out there have somethin we can borrow?

Hi Everyone:

Does anybody have the bible on CD that we can borrow. Or even a portion of it. I purchased Jim "The Jesus Project" for Christmas, but we returned it because the Psalms weirded us out, but Jim is unable to read and would love to listen to scripture. If so, let me know. Thanks.

Love Gloria

Thursday, July 10, 2008

Mending

Well, I guess I'm the only one who thinks my Honeybee is beautiful, as there were no responses. :)

Well, I am on the mend. I'm so glad that it didn't turn into bronchitis. I'm still weak, but I can tell I've turned the bend.

Jim, well, he's not doing very well. He was out of bed for a total of about 20 mins today. It's not good for him to be in bed, yet, he's so sick, and so weak. I can't imagine him going through 4 more doses of this chemo. It's brutal. He came to sit outside with me, and ended up vomiting, so that didn't last long.

Today, I called my sister, who has been using Jim's cell phone, so that she can take more responsibility of taking care of my father and the nursing home isn't calling here 24/7, but rather is calling her. She didn't answer, and Jim's message came on. I started balling my eyes out when I heard his voice. It's been so long since my dear husband has sounded like that. He left that message when he was healthy and we had no idea that this was around the near future for us. It's been so long for so many things. I miss him. I miss us. And I pray dear Lord that you would touch my dear husband and give him the strength he needs to submit to whatever it is that you want him to submit to. He can only fight if You enable him to. And he can only let go gracefully if You enable him to do that as well. Please be gentle with him. I can't stand to see him suffer any more. It's my request that You would make him well, without having to suffer any more. I almost hate asking that God, because I believe I'll get a "no" answer, and yet I know and believe that you can do that.

I'm trying to get over this darn cold, and then I cry, and my sinuses go berzerk again. I wish we were going to the wedding tomorrow, where we would eat good Baldauff cookies, I would fast dance, and Jim would ask the DJ to play "Unforgetable" and we would slow dance and he would sing it to me.

This will be the 3rd wedding we will miss this year. We feel bad not seeing all of you, our dear family. Have fun for us. We love you. Keep praying for us.

Love Dolly (Gloria)

Tuesday, July 8, 2008

?????

I have some type of flug bug and am very sick.

Jim came home today, wiped out. His white blood cell count is down to 1.2, which means his immune system...which means he doesn't have an immune system.

We are both wearing masks so he doesn't get sick.

I can't do anything for him. And he can't do anything for me.

I probably have rheumatoid arthritis. Can't get an appt. until November.

Life seems pretty bleak the last two days. I'm soooo weary. Soooo tired of living it. What the heck is there to live for anyways. I truly believe the best part of my life in this world, as pathetic as it was, is over.

And then my sister e-mails me a picture of my niece, and I fall in love with my Honeybee all over again. And in seeing her pretty little face, God reminds me that life is good. It's amazing what God gave to babies. For creatures so helpless, they sure have lots of power.

Isn't she beautiful. I'm her Aunt "Dool." And she likes to blow "bubba" when she comes to my house. She has my mother's red hair.


And seeing her face puts the wind back in my sails until I get over my illness and can get back to the good life of Passavant Hospital, UPMC Cancer Center and Cooking. (There's gotta be sarcasm while I'm still sick, ya know.)

Monday, July 7, 2008

sick

Hi Y'all:

Well, Jim's chemo went so much better than last time. He's probably coming home tomorrow. But we're scared of that because I'm sick. And 1.5 months ago, I was sick and gave him bronchitis. But he still would rather come home than go to T & J's because he said he needs his bed. I don't know who is going to take care of him.

Too sick to type

Friday, July 4, 2008

Happy 4th of July

Happy 4th Everyone:

I was watching Adrian Rogers this morning, and he was talking about the state of affairs of our country and this upcoming election.

He said: Pray for REVIVAL
Plan for SURVIVAL
& Look for His ARRIVAL

They all sound good to me.

Well, Johnny is up the cottage. (Glad someone is using it) and I'm celebrating the 4th this year in the hospital with the one that I love.

You all have a great 4th with family and friends, and may God Bless America and turn her hearts toward Him.

Gloria (Dolly)

Thursday, July 3, 2008

Obedience

Obedience feels soooooooooo good. Not in the sense of, "Oh, I've succeeded, therefore I am worthy." It feels good because I danced with the lie that "I have the right to..." and refused to continue to dance, through the power of the Holy Spirit. So, I take what I think is sadness for what I'm missing by obeying, offer it up as a pathetic sacrifice on my part, but what is a smile to my God, and what do you know???? It feels good. Really good. No shame. No self doubt (not that that is a big deal because I think to feel self doubt is foolishness in the first place because it shows that I somehow believed in myself, in my own strength, in the first place). And no starting over from the beginning from the bottom of that slippery slope.

Edith Bunker

Withholding INFO

Hi Everyone:

Well, I couldn't bear to write another up and down post to the cotinuing saga, so I didn't. Jim had to have another CT scan because of a new lump. It turns out, it was the old lump, it's just that they could feel it now from the outside, since he's lost so much weight. The CT scan revealed that it has shrunk in half (don't do cartwheels, this happened last time) so they can continue to at least try this chemo. That is very good news, very good news. So...anyway, see I spared ya'll and suffered all by myself. Well, I told a few people who suffered with me, so....

Jim's getting his first dose of the 5-day chemo today. Pray that he handles it better.

Oh my soul....
Gloria

Wednesday, July 2, 2008

Oh my soul

When clouds veil sun
And disaster comes
Oh, my soul, Oh, my soul

When waters rise
And hope takes flight
Oh, my soul Oh, my soul Oh, my soul

Ever faithful
Ever true
You I know, You never let go

You never let go
You never let go
You never let go

You never let go
You never let go
You never let go

When clouds brought rain
And disaster came
Oh, my soul Oh, my soul

When waters rose
And hope had flown
Oh, my soul Oh, my soul Oh, my soul

Oh, my soul Overflows Oh, what love, oh, what love

Oh, my soul, Fills with hope
Perfect love that never lets go....

(David Crowder Band)

Thank you Lord, for not letting go.

C-Day

Well, today Jim gets his second round of Chemo. It's a very sad thing to nurse your husband back to a quasi-state of health, so that he can go back in the hospital to again ride the brink of death so that he can come home to do it all over again. And the fruit of this fight for Jim is that it "may" work, but so far it doesn't seem like it.

I type this for you, so you all know what is going on, because I know you love and care for us. To tell you the truth, I'm sick of it all. Typing, needles, medicine, driving, cooking...but I've been sick of cooking way before the cancer. ;) I'm sick of EVERYTHING...

Oh, wait. See....there is a reason to be excited. Today is Wednesdays, and they have Rice Krispie treats today, Yippee. Hope I get one before all the mean nurses eat them up. Anybody want to know Passavant's menu, let me know. I know it off by heart.

Us