Wow

Well I got all kinds of things to talk about. First and foremost, the PT scan.

It hasn't been officially read by a radiologist, but Jim's team of oncologists read it, and according to the PETscan, Jim's in REMISSION, with no sign of cancer. Now, every thing changes here, so we shall see. And this doesn't mean that Jim is cured and doesn't have to have the stem cell transplant. (doesn't mean he isn't either, though...) But this is very good for the STC working better. Also, we have to wait until the 18th before we start and Jim's cancer is soooo aggressive, as you all know by now, so we're glad nothing is lighting up. Again, we have to take this with a grain of salt.

So, after 19 months of Jim fighting this cancer, this feels good for today. I said to Jim not too long ago. "Wouldn't it be something if the PET scan showed the cancer was gone. I would just relax and rest for a day knowing that your distorted DNA isn't trying to kill you. Who knows, maybe God healed him. Or not. Either way we have to have the SCT cause with Jim not getting chemo right now, it could trying to grow. But isn't that cool. It's very cool to think that. And it's good news for the SCT. What's not cool is that had we come here before CHOP, they would have done EPOCH, and Jim may have gone into remission and stayed there for life. Woulda coulda shoulda...not gonna. It is what it is. And for today, "no cancer" is fun to think of.

Today Jim started to procedure to put onto the SCT team. He's having all kinds of tests done, meeting with the social worker, the nutritionist, etc. This will take all week. My plans of coming home might have to change....again....because Jim's next chemo before the STC is marked on his itinerary as an outpatient, and with this seton stuff and his issues, he's upset now and we have to figure this one out.

Jim also has thrush from all the antibiotics he's been on and it's going down his esophogus, so we have to work on this one, too.,

I'm supposed to go to the Lodge on the 5th and then leave the 8th and go back the 10th. I think I'm going to tell them not to the Lodge until Jim's stem cell. I hurt my back lifting my luggage, back and forth, back and forth, and I'm just tired of all this changing all the time. I literally have been living out of a suitcase for almost 4 months now. Jim, too. Despite being home twice in that time, it was short, and filled with things to do and Jim going to the hospital. So, my plans are still up in the air. But I am going to Bob and Shelley's tonight.

Well, Jim's a bit upset about a bunch of things right now, so I have to go and ease his mind.

Talk to you later
Love Us