update

Hi Everyone:

Jim is doing well. He's in more pain. (he thinks it's their bed) It probably is. It seems the slightest change can tilt things.

I was getting frustrated about nothing happening. All he had was a CT scan and it showed no cancer or anything wrong...which is good. But that means to the doctors, well, he's okay, so they send in the social worker. Well, she comes in with her psycho-babble BS. He calls her on it, and so they send in a Psych. (Yeah, NIH. Jim is lying about the pain for attention? So that he can live in the hospital? Cause he would rather do that than live real life? The docs called me then, asking the same questions they asked him. ..."Why is Jim in bed? CAUSE HE CAN'T SIT OR STAND. My word!!!

It's very reminiscent of when he was in hopt. 4 years ago with pain. After 2 negative biopsies, they question whether he is there trying to get drugs. Dah...

Anyway, the head head shrink okays him, and finally FINALLY FINALLY after 2.3 years of telling them he's in pain and having numerous health care issues, they seem to believe him. They send in a neurologist. He's only been asking for 2.4 years. He tried to see one up here, but other issues kept getting in the way. He did see a surgeon who read the MRI that said he had real bad issues, but then the last neurologist seen in Passavant said, "Oh, you're back is okay..blah blah blah."

My chiropactor says he thinks it's Jim's cooked flesh and nerves and tissue in his back from the radiation. I think he may be right. Who knows.

Anyway, the neurologist asked question after question, wanted to know everything and told Jim to write down anything as it comes to him. So, we'll see.

Good news is that they gave Jim another breathing test, and the "GVHD" of the lungs has not progressed any further. The doctor doesn't want to put him on that trial still because he can't make the trip every month for followup. And I don't want to make it either. But that is good news.

"GVHD of the nerves" has been tossed around a few times, and that would make sense, but treatment? Who knows.

As for the blood pressure and low heart rate? Who knows. And hard stomach that makes it hard for him to breathe, well, hopefully the neurologist will know.

That's it folks. Thanks for your prayers

This note is for Judy....Judy, I SWEAR he forgot his pillow on purpose so that Tom would have to take him to Costco, so that he could BUY another membership. I did NOT want another membership. He did. But since he couldn't get there ever, we didn't get one. Very convenient Jim. And he uses the excuse of the pillow, oh and the pants, too. lol. Is he a piece of work or what? When I take him, it's hell. He goes with his brother and they go shopping, and out to eat. (I think he was just so pleased to be with Tom that it added to his spirits.) But another Costco membership??? What about the price of gas Jimmy? Well, I guess I can't be mad to him, can I? K.