Monday, March 22, 2010
Sunday, March 21, 2010
up since 3 thinking too much
Well, I can't shake this cold or tooth ache, so I'm up.
I had a weird experience yesterday. I was going downstairs and asked Jim to come down. We had been talking. He said that when someone asks him how he's doing he's going to say, "a little bit better." Immediatedly after that I headed downstairs, and Jim followed, when he said, "Oh, what am I doing. I have to put my shoes on." And it was weird to me. Jim's feet/ankle pain/numbness/fire hotspots are so bad he wouldn't think of trying to walk stairs without shoes on.
I don't know why I post that and why it had such an effect of me. I guess it's just that within this weird little life we live, I've trailed off in my daily life far enough to forget something so significant as Jim can't walk without shoes on. And it made me sad to think that the grass under his feet would feel like needles trying to reach out to his midriff via his feet, and that he will never experience that cool sweet feeling, and even worse, that he will never do the Helgie shuffle again.
I guess I don't let myself think/feel a lot about these things. Besides surrendering them, I mean, what do I do with them? Weird...
I had a weird experience yesterday. I was going downstairs and asked Jim to come down. We had been talking. He said that when someone asks him how he's doing he's going to say, "a little bit better." Immediatedly after that I headed downstairs, and Jim followed, when he said, "Oh, what am I doing. I have to put my shoes on." And it was weird to me. Jim's feet/ankle pain/numbness/fire hotspots are so bad he wouldn't think of trying to walk stairs without shoes on.
I don't know why I post that and why it had such an effect of me. I guess it's just that within this weird little life we live, I've trailed off in my daily life far enough to forget something so significant as Jim can't walk without shoes on. And it made me sad to think that the grass under his feet would feel like needles trying to reach out to his midriff via his feet, and that he will never experience that cool sweet feeling, and even worse, that he will never do the Helgie shuffle again.
I guess I don't let myself think/feel a lot about these things. Besides surrendering them, I mean, what do I do with them? Weird...
Wednesday, March 10, 2010
echnids and wombats
Without googling, does anybody know what echnids and wombats are?
Garrrrrrrrrrrrrrrrry?
Cousins of the Koala? Players of the didgeridoo?
Eaters of the Vedgimite samich?
Gary. You always bring a smile to my face
Gloria
Garrrrrrrrrrrrrrrrry?
Cousins of the Koala? Players of the didgeridoo?
Eaters of the Vedgimite samich?
Gary. You always bring a smile to my face
Gloria
Sunday, March 7, 2010
Home from the NIH
Well, we are home from the NIH. I bet "you" didn't even know we were going. Well some of you didn't.
Jim's appt. with the pain clinic didn't go that well. We basically have to start going to a pain clinic up here. They can't work with him unless he can come in every 2 weeks, and well, we just can't drive there every 2 weeks, so we have to use the pain clinic here. You know. The one that thought Jim was faking his pain 2 years ago so that he could cop some drugs. Yeah, that one. LOL. However, Jim has to switch to Medicare healthcare, and we're not sure what that means yet. So we'll see what this next leg of the journey brings.
Jim received 6 immunizations. Polio, DPT, etc. etc. They want to put him on immune suppressants again because the GVHD on his legs is not healing, and he has to be GVHD free for 6 months to receive a needed immunization at 24 months. We don't feel too good about that, as his immune system is already taxed, so we're praying about that one.
We have to go back in 3 months for another PET scan and more immunizations. The Immunizations will take a few years to get back. So, anyways, that's the news on this homefront.
The snow has still not melted. On the grass or in my bones. Come spring.
Jim's appt. with the pain clinic didn't go that well. We basically have to start going to a pain clinic up here. They can't work with him unless he can come in every 2 weeks, and well, we just can't drive there every 2 weeks, so we have to use the pain clinic here. You know. The one that thought Jim was faking his pain 2 years ago so that he could cop some drugs. Yeah, that one. LOL. However, Jim has to switch to Medicare healthcare, and we're not sure what that means yet. So we'll see what this next leg of the journey brings.
Jim received 6 immunizations. Polio, DPT, etc. etc. They want to put him on immune suppressants again because the GVHD on his legs is not healing, and he has to be GVHD free for 6 months to receive a needed immunization at 24 months. We don't feel too good about that, as his immune system is already taxed, so we're praying about that one.
We have to go back in 3 months for another PET scan and more immunizations. The Immunizations will take a few years to get back. So, anyways, that's the news on this homefront.
The snow has still not melted. On the grass or in my bones. Come spring.
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