WE ARE SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO IN TROUBLE IF WE EVER GET GOVERNMENT HEALTH CARE.
This place is a zoo. I've said it all a long. They are GREAT at saving your life and then making it a living hell. LOL.
Well, we are coming home tomorrow, after he is seen at the dermatology clinic. Jim basically hasd GVHD all over his body, including his mouth. We have to come back in 2 weeks to get Jim's tooth extracted. They will admit him into the hopt. because he will need a platelet transplant. His blood numbers are the worst ever. Last night they gave him a bolus of saline because his kidney numbers are high. They are high again, and he's getting another bag. Two weeks ago, they said, "You're magnesium numbers are fine. Stop taking the mag." We just looked at each other and thought in our heads. "YOU'RE NUTS." If the mag numbers were high, yeah we would stop taking it, but when you are taking 500 mgs of magnesium 3 times a day and the numbers come up "okay" in your blood test. HELLO. So we went down to twice a day instead of dropping it altogether. Thank goodness. Because after Jim is done with his hydration, they are giving him liquid magnesium. Sigh. What else. Now he needs neupogin 3 times a week instead of 2. I hate giving him shots. What else...oh tons, but nothing big.
Despite the high fever it has come down to this scientific information. Jim looks good. Hey Tom, you should have been a doctor.
So, we're going to stop at Mineo's on the way home for that pizza.
Thanks for prayers. please please PLEASE pray that God would miraculously heal Jim's blood totally. He isn't even producing bone marrow in his spine. It's a miracle that he does look good. So, please pray for that. Thanks.
1 comment:
Hello Baldauffs,
The last thing I remember hearing last night before falling asleep was Brian and Hannah praying for you both. We continue to pray for you daily. What an ordeal this has been... we are thankful for the healing so far and look forward, with you, to complete healing. We are in Richmond this week. I am on day 3 of 3 working the Virginia Homeschool Convention. It's been in the 90s all week, but despite the heat, we've enjoyed catching up with old friends here. It's been especially important to the kids to meet other children in our network of friends since they do not remember having friends here. We should be arriving home Sunday night.
Love,
Amy (for the Smiths)
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