Monday, February 7, 2011

A VERY hopeful thing happened

Hi Everyone:

Thanks for the encouragement that you post as responses to me. It lifts me up, folks.

So, yeah, Gary from Australia is dry and safe and so far Judy does NOT have cancer. Test are not all in, but so far so good. (We keep praying Jude)

Now that you sit on the edge of the seat waiting to hear of the hopeful thing, here it is. I"ll give it to you short.

We continually try to figure out what is it that makes Jim's pain good or bad. I have been wanting him to go off of all the extra meds and in thinking of that, it seemed to me that Jim's pain has continually got worse since we got home from Israel. So what could that be? So I thought some more. Jim brother had bought him some very expensive supplement for Jim to take prior to our trip to Israel. Jim took it. And we busied ourselves with getting ready for the trip. The weird thing is that it was a supplement that boosts the immune system. Well, we take vitamin C, and Jim was taking an expensive Cell Forte inositol with maritake mushroom thing that boosts the immune system, but basically he stopped taking it because what does that have to do with the pain. It's always recommended for people with cancer, and I'm thinking that's why brother dear bought it. But anyway, it seemed to me that since Jim stopped taking it, his pain got worse. But Jim didn't think that was the case. But he did find some extra pills that he had left over and he started taking them, and what do you know, but his pain continued to lessen. And while it was still there, it was bearable, compared to how it can get. Was it coincidence??? Well, after a week he ran out, and the pain has got continually worse. So, it seems that what I noticed may be true. So I looked up more info on this supplement, and while the Cell Forte is good, nothing is quite as good as this Transfer Point Beta Glucan. It also states that it's the fastest working beta glucan on the market, and this lines up with what Jim was experiencing.

That is exciting, but this is even more so. We still don't understand what beta glucan could do about pain, but we always ALWAYS saw that after the stem cell transplant, when Jim was put on immune suppressants to supress the GVHD or the cancer, his pain ALWAYS GOT WORSE, extremely so. So much that he had to go off the supressents. And Jim remembers saying, "Geeze, if they could make a pill that does the opposite, like an immune system booster. DAHHHHHH. That's what this beta glucan 3-1, 6-1 is. But particularly this brand that Jim's brother researched and found (WTG, BILL....) This is truely the only thing that has showed some promise. Needless to say we ordered some immediately, and even went to GNC to get some in the meantime. The NOW brand is the second best to the Transfer Point, but....it's better than nothing. Some beta glucan, even brands touted as "the best" off less true BG than saline solution. So that was very good research Bill.

We are very very VERY VERY VERY EXCITED about this.

The "possible" problem is that if Jim's immune system is boosted, could that mean the GVHD possibility would be boosted as well? We don't know. Jim's willing to take a chance, but here's the thing. The whole time Jim was on it, and was able to ready himself for a trip around the world, he never got bronchitis or anything. It wasn't until he went off it, at the time of the trip, that he got bronchitis. He lungs were impaired before going on the BG, but didn't get worse while on it, so, I'm not worried about that.

As for the boosting of the immune system possibly boosting any cancer cells, well, you know, we all just don't know. But we know this. Jim CAN'T live in that pain anymore, and there is nothing that can be done, so we are going with this.

I hope that makes sense to everyone. This is very exciting for us. Stay tuned. What Jim wouldn't give for that old constant level 6 pain again. Yeah, he won't be able to work or throw out the Methadone, but he can smile at least and have some hope.

Us

4 comments:

Judy said...

So very thrilled to hear, and praying for more, a mighty miracle for Jumbo, and more hope!
Love you,
Judy

Kelly said...

Very good news, thanks for sharing.

Keep us posted on the progress!

Karen Arndt said...

OH!!!!! I feel so much relief after reading this I think I might cry! I really really hope this works! I'm still praying for you both :)

Anonymous said...

Gloria, I think we should start saving money for you to go to medical school! :-)

Good figuring...and I'm hopeful and praying this is a good thing!

K