Saturday, April 25, 2009

no news is same news

Hi Folks:

Well, it's hot today and Bob is opening up his pool. I hope it warms up enough for me to swim in before we leave. (I'm still hoping for end of May.)

I miss home so badly. Except for the few days home in January, which were entirely stressful, we haven't been home in over 5 months. My sister has sent me a few pics of things blooming in the yard. I miss selling perennials on my table out in the front yard and talking with the fellow gardeners who stop and chat occassionally. I miss church. I miss many things and people.

Going home scares me though too, because not only do I still have hour to hour care with Jim, I will then have to shop, cook, clean, landscape, exercise, try to find someone to repair the chimneys, dust and clean 5 months of dirt...and go to my doctor.

I'm falling apart. My back hurts from pushing unfriendly wheelchairs around all day. I think I'm at the end of my ability to live out of a suitcase and handle the stress of all of this. After 10 years of freedom from exzema on my hands, it's back, and I have no cream. It's from nerves. My nails are slivers. My stomach is in constant pain. I'm not sure if I am developing colon problems or an ulcer. It hurts badly. I can't find my smile very often, either. Oh, it's there on the outside, but it's not there on the inside all the time. I miss that. I hope that comes back. I LOVE LAUGHING AND CUTTING UP.

I have been having some great God time, and that is really cool. It's funny how people equate good time with the Lord with being happy. Not so, but I don't want to get into that. I continue to learn to be less selfish and more loving, and yet it's surprising how far I have to go.

Jim is the same in weird ways. The rib is feeling better, but then the gout is back and there's another thing to make it difficult for him to walk. The GVHD is getting pretty bad on his face. It's peeling like a lizard. I have cream that I put on his face, neck and back and chest. The immune suppressing drug that he is on needs to be regulated better, so he's up and down on the meds. I'm still giving him neupogin shots. His platelet numbers are a little better, but then the kidney numbers go bad. He's still retaining water, and he's tired most of the time. He's lost his smile, too. And he's only ever had one on the inside. (when something is really funny and he doesn't laugh, I ask him why he doesn't think it's funny and he says that it is funny. I say, "you're not laughing," and he says, "I'm laughing on the inside." ) So he's not laughing or smiling on the inside.

We did go to a few garage sale today. That was Jim's idea. He wanted to do anything but lay around. It's hard for him to get in and out of the car with the walker, so used his cane. It totally wore him out and he is sawing logs. I didn't get much. I couldn't resist a never used noodle maker for 3 bucks, so I could swell it in on Ebay for 50, but Shelley doesn't have one, so now she does. :) That was fun to bless her with after all her cooking for us. (and if we get homemade noodles from her some day, well, what do you know. :) )

Well, I'm going to go for now. Continue to pray for my dear husband. He needs a total healing of body, mind and spirit. Heck, so do I.

Us

PS. For a funny story, call Bruce. ;) Thanks Bruce.

5 comments:

mary jo said...

Hi to You guys. It's a gorgeous 80 degree Sat. This is my sweet mom's 83d birthday. My siblings and I are taking her out for dinner to Mark Pi(chinese). --I bet You can't wait to get home. Everything in the area is in bloom. It will still be here when You get home ;only summer flowers. I have a bunch of bulb plants to put in that died off since Easter. That's tomorrow. Joe is hanging in there in China. Business is booming over there. He'll be away another week. I'm glad You got to the yard sale today. There are a bunch going on here in Bethel . Everybody is outside.--We look forward to You getting home. What about the mold issue? Joe told me Cook's Forest had that and Billy bleached everything(walls). We'll have to all get together to help You. Praying and Loving You, MJB and JB

Anonymous said...

Sister when the man from church called about the grass cutting I laughed. We still laughing and would do anything to know what the people thought who grass did get cut. Mark sprayed half the driveway and he'll buy spray. We used what we had couldnt any of yours and your sprayer wouldnt work. The green house is all shaded up now. The chickadee's are going in and out of birdhouse and those bad spudzy well you know where they roosting. I'm taking a break from helping doing our pond wanted to see the score of the Pen's game we losing. Mail was picked up today and I went thru it and mailed you mail.

GIna having some problems again with the pregancy so she will home rest for a week. THey know what they are having too. I'll call you on it cause Crunch needs to call Zach and tell him I dont want him reading it online.

I'm glad you guys went out today. I'll need a pic of that pool.

I love and miss you.
Prayers and then some

Judi said...

It was beautiful here today and we took the girls to the park. Abbie had to get glasses and we are trying to get her to wear them! Almost impossible, but we are working on it. I hope you get to swim in that pool.

I hear you Aunt Dolly and I'm praying. Nothing you are feeling is a surprise. But you are not alone. You are both very much loved and we are praying for you.
Be at peace,
Love,
Judi

Kelly said...

Glad to hear from you... just keep taking it one day at a time. Thinking of you both...

Anonymous said...

We will pray for the healing...for both of you!

K