Well, apparently, I need to keep the masses informed, so I'll blog for you all just so you know.
Jim is in Magee's nursing home rehab, as you know he can't come home because of me and him.
This morning, Jim's blood numbers have once again tanked. The big muckity muck of blood for the Hillman Cancer Center came to see him. Jim's biopsy came back negative, but there just isn't any understanding as to why his immune system keeps tanking. The prednisone should be out of his system by now. So anyway, he is back in isolation. I thought he was coming home.
I may need knee surgery, so I'll keep you abreast of that, as well.
Tuesday, December 9, 2014
Monday, December 1, 2014
Different year, same situation.
Well, it's been a year since I've posted, and Jim's in the hospital like last year at this time, w/ another blood related issue.
Well, doctors have been talking for 5 days and finally have come w/ a plan. They've been running a myriad of blood tests. They can't do a PET scan in patient, so they are doing a bone marrow biopsy, looking for cancer again. They did a CT scan last night. Today is the biopsy. After that, they are going to do a spinal tap to look at this spinal fluid. (scary)
Jim continues to be in extreme pain, numbness, unable to walk, but his spirits are still not defeated.
He just called. His biopsy is at 12:00. He asks for your prayers of course.
On my end, I'm not sure what I did, but my knee has water on it, and I'm having a hard time getting around, and it keeps on clicking, and I can't walk too well, either. My spirits, well...next subject. My PSTD has really been heightened lately. And Rio sits here looking at me like, "Hey, throw the darn ball."
I need to call Orthopedics, but I really just want to hide under the covers and let the world fade away. Every time I try that tho, it's still there. But My Jesus is still there too. He refuses to leave. Thanks friend.
Well, doctors have been talking for 5 days and finally have come w/ a plan. They've been running a myriad of blood tests. They can't do a PET scan in patient, so they are doing a bone marrow biopsy, looking for cancer again. They did a CT scan last night. Today is the biopsy. After that, they are going to do a spinal tap to look at this spinal fluid. (scary)
Jim continues to be in extreme pain, numbness, unable to walk, but his spirits are still not defeated.
He just called. His biopsy is at 12:00. He asks for your prayers of course.
On my end, I'm not sure what I did, but my knee has water on it, and I'm having a hard time getting around, and it keeps on clicking, and I can't walk too well, either. My spirits, well...next subject. My PSTD has really been heightened lately. And Rio sits here looking at me like, "Hey, throw the darn ball."
I need to call Orthopedics, but I really just want to hide under the covers and let the world fade away. Every time I try that tho, it's still there. But My Jesus is still there too. He refuses to leave. Thanks friend.
Tuesday, December 10, 2013
It's beginning to look a lot like Christmas...NOT
Well, a quick update of sorts.
Jim's blood is still not rebounding. He still has home nursing and is still getting neupogen shots. We pray that it heals up, because the shots are going to end soon, and we don't know what that means for him. If his immune system continues to fail him, I don't know if there is anything they can do.
I'm a little ill right now. Bible study has been hard this semester, and it's been 4.5 months since our ceiling caved in and I still don't have carpet or furniture. I got the living room painted and carpet was supposed to come tomorrow but is now cancelled until next week, which is okay, cause I'm sick, but it just is hard living like this.
That's all I can say about Jim right now.
Jim's blood is still not rebounding. He still has home nursing and is still getting neupogen shots. We pray that it heals up, because the shots are going to end soon, and we don't know what that means for him. If his immune system continues to fail him, I don't know if there is anything they can do.
I'm a little ill right now. Bible study has been hard this semester, and it's been 4.5 months since our ceiling caved in and I still don't have carpet or furniture. I got the living room painted and carpet was supposed to come tomorrow but is now cancelled until next week, which is okay, cause I'm sick, but it just is hard living like this.
That's all I can say about Jim right now.
Thursday, October 17, 2013
Wow Finally
I screwed something up and couldn't get into my own blog. And I didn't have the time to figure it out until now.
Jim is home and has been for almost 2 weeks. We just found out that his Absolutely neutrophil count is low and needs neupogen, which will cause lots of pain, more than he has now.
Continue to pray for Jim's pain, shingles and his blood which continues to fail him. Pray for me and my stamina, eating and ability to handle it all and when I can't to run to the one who can.
Thanks me.
Jim is home and has been for almost 2 weeks. We just found out that his Absolutely neutrophil count is low and needs neupogen, which will cause lots of pain, more than he has now.
Continue to pray for Jim's pain, shingles and his blood which continues to fail him. Pray for me and my stamina, eating and ability to handle it all and when I can't to run to the one who can.
Thanks me.
Thursday, October 3, 2013
Jim's coming home, thirsty for more
Well, it turns out that that new excruciating pain was from the neupogen shots causing muscle issues. They think. I'm not sure tho. I hope so. Those elevated numbers that they thought was a blood clot, which wasn't are still there and they are not sure why. They aren't sure of a lot of things. I'm so glad I do know the One who is sure of everything.
So, he's coming home. And FINALLY they are giving him home nursing. I wonder if they could give us home cooking, home cleaning, home laundry, home painting, home plastering, home carpeting, home caulking, home dog walking, home bill paying, home...Or maybe I could just run away. But I can't cause MY HONEY IS COMING HOME.
I feel like a kid going to Disneyland. I can't wait. I have missed him home in his own bed really bad this time. Of course after a half of a day of moaning, him taking over the tv and telling our dog that he stinks, I might just want to send him back. Just kidding hon.
Please pray for him and his pain, and for me and my brain. I don't feel right any more at all. I'm plum tuckered in so many ways, I don't know how to even begin.
I'm so thankful to God that's he coming home. You would think by now that we would both just want Jim to give up the ghost, and there are times that we feel that way, but Jim still wants him to live, and despite my fatigue and often feelings of sheer exhaustion and hopelessness for experiencing anything life changing, life giving here in the land of the living, I don't want him to give up the ghost either. So, ok, excuse me for a second while I talk to my Lord. "So, God is what you're saying to me this, "Drink up of this struggle. You're going to want to stop drinking, but I'm going to make you thirsty for it anyway." Hmmmmm. No comment.
So, he's coming home. And FINALLY they are giving him home nursing. I wonder if they could give us home cooking, home cleaning, home laundry, home painting, home plastering, home carpeting, home caulking, home dog walking, home bill paying, home...Or maybe I could just run away. But I can't cause MY HONEY IS COMING HOME.
I feel like a kid going to Disneyland. I can't wait. I have missed him home in his own bed really bad this time. Of course after a half of a day of moaning, him taking over the tv and telling our dog that he stinks, I might just want to send him back. Just kidding hon.
Please pray for him and his pain, and for me and my brain. I don't feel right any more at all. I'm plum tuckered in so many ways, I don't know how to even begin.
I'm so thankful to God that's he coming home. You would think by now that we would both just want Jim to give up the ghost, and there are times that we feel that way, but Jim still wants him to live, and despite my fatigue and often feelings of sheer exhaustion and hopelessness for experiencing anything life changing, life giving here in the land of the living, I don't want him to give up the ghost either. So, ok, excuse me for a second while I talk to my Lord. "So, God is what you're saying to me this, "Drink up of this struggle. You're going to want to stop drinking, but I'm going to make you thirsty for it anyway." Hmmmmm. No comment.
Sunday, September 29, 2013
Jim is still in the hospital
...and he's not doing very well. I just got a call that they are taking him down for a special test, that he might have a bloodclot in his lung or something. I'm not sure if anyone reads this anymore, but if you do, pray for Jim's comfort. I'm going in.
Friday, September 20, 2013
I guess I can't quit even if I want.
Hi family and friends
I guess it's still easy to post here than to let everyone know how Jim is doing.
Also, much to my surprise, this has become my calendar of sorts, so that I can determine what happened when sometimes.
Well, Jim is in the hospital. Here's why.
This summer has been horrendous in just too many ways. Hand surgeries, pain, work, pain, break down on the way home from the cottage, van no good, collapsed ceiling, broken toe, dealing w/ insurance, the plaster that's been repaired bubbled, the painter then can't paint and can't come until November, bible study started and there are now 38 women in my class (yikes) and blah blah blah. Is it any wonder that we are so stressed out and that this stressed cause Jim to get shingles.
Well, he's in the hospital. He's in so much pain cause of the shingles, he's on tons of dilauded. The nurse is being a witch. His neutrophil count is dangerous at 400, and the blood doctor hasn't been in to see him, and it's a Friday, which means nothing often gets done at the hospitals on weekends. They wanted to give him a nerve block but can't because of his blood issues, including the perpetual low platelet count.
20 mins later. I just got off the phone w/ the doctor to "ask" that he be put on neupogen because of his neutrophil count which is dangerously low. His witch nurse is gonna be in trouble.
Anyway, please pray that this insanity stops. I don't know how many times I've said I can't take anymore, and apparently, there is no end to what Jim and I can take. So, I'm changing it, but I don't know to what. Any suggestions?
Us
I guess it's still easy to post here than to let everyone know how Jim is doing.
Also, much to my surprise, this has become my calendar of sorts, so that I can determine what happened when sometimes.
Well, Jim is in the hospital. Here's why.
This summer has been horrendous in just too many ways. Hand surgeries, pain, work, pain, break down on the way home from the cottage, van no good, collapsed ceiling, broken toe, dealing w/ insurance, the plaster that's been repaired bubbled, the painter then can't paint and can't come until November, bible study started and there are now 38 women in my class (yikes) and blah blah blah. Is it any wonder that we are so stressed out and that this stressed cause Jim to get shingles.
Well, he's in the hospital. He's in so much pain cause of the shingles, he's on tons of dilauded. The nurse is being a witch. His neutrophil count is dangerous at 400, and the blood doctor hasn't been in to see him, and it's a Friday, which means nothing often gets done at the hospitals on weekends. They wanted to give him a nerve block but can't because of his blood issues, including the perpetual low platelet count.
20 mins later. I just got off the phone w/ the doctor to "ask" that he be put on neupogen because of his neutrophil count which is dangerously low. His witch nurse is gonna be in trouble.
Anyway, please pray that this insanity stops. I don't know how many times I've said I can't take anymore, and apparently, there is no end to what Jim and I can take. So, I'm changing it, but I don't know to what. Any suggestions?
Us
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